ABOUT

The Premise: Knowledge is as valuable as the cure.
The Protagonist: People born with Angelman Syndrome.
Conflict: So much of the information out there is false and creates fear in those who read the clinical characteristics.
Resolution: To relieve the parents of newly diagnosed children and encourage them to join the F.A.S.T community. Also to incentivise donors to join the cause.
For this online content, I begun by visiting all the major states and interviewing 25 families of different who have raised children with Angelman Syndrome. The goal was to paint a wide picture of the variability of the condition so the participants ranged from 1 to 35 years old and expressed different characteristics due to different mutations of the gene.
The 40 plus hours of footage was then edited down into short stories about each families struggles and fond memories.
From these stories we were then able to construct a series of different clips each themed around the three objectives of Understand, Manage and Cure.
With Understand our goal is to teach the general public about the condition and encourage parents to get early tests on their children.
The videos were grouped into the Manage section are educational resources for parents. Providing some direction to the therapies that are available to them.
For the Cure section we highlighted the amazing work done by researchers and explained just how close a cure is. If you can land a man on the moon, you can cure a tiny error in the 15th Chromosome.
When the first video was released, a long list of emails came flooding in from parents thanking us for showing the honest lives of people with Angelman Syndrome.