ABOUT

This is a short documentary on the rare metabolic illness called Barth Syndrome, the condition only affects males and currently there are only 200 or so families known to have the condition worldwide. I was asked by the Barth Syndrome Foundation in America to create an awareness video for the condition, this has then gone on to be used at Bristol Children's Hospital at there clinic days. This is to raise awareness of the condition and the support that is there for the families and boys with this rare illness.